Well, that Thursday, I took Deniz to her Ballet class. As soon as she stepped in, my phone rang. I ran outside. It was the surgeon. He asked me how my scar was feeling.. I said it is fine. Then there is a slight pause.. He says, not exact words because I do not remember: "well, I am afraid you have cancer. It is called "invasive ductal carcinoma".. and it is hormone receptor negative" Me: "S..T!".. I know a little about this.. Because I had been reading a great book: "The Emperor of All Maladies: Cancer", that talks about the history of cancer, and just a few days ago, I have read how they have discovered that some breast cancers feed on estrogen or progesteron, they have receptors that detect these hormones and in response, they grow and divide. I know about this, because one of my best friends has been diagnosed with breast cancer just a few months ago, and hers is hormone receptor positive, so she will get treated - after chemotherapy - to reduce her production of estrogen, basically put into menapause, so her cancer cells, if there are any left, do not thrive, and instead die.
The doctor says: " well, it is quite aggressive, and the fact that you are young is not much help!"
When I first heard "cancer", this is how I felt: The time has stopped, I am falling down in to an abyss, and I think, "can I make the time go backwards??, can I make this not happen at all?" There is howling in my ears, I am pacing back and front..
So we talk a little more, he tells me that he has to go back, he has to take out more tissue, because he didn't do a "tumor removal" operation.. We talk about options a little and then decide that I will see him the next day in the morning...
I hang up. I call Dan. I tell him everything that I remember.. He is shaken, I can hear it in his voice.. How can he not be? I tell him, please come home early today... We hang up.. I text my sister.. it is 2 am in Turkey.. she calls back in a few minutes.. we talk, I tell her what the Dr. said.. I go back into Deniz's ballet class.. I want to watch her, I want to be there, every minute of it.. but I cannot, my brain is not right. I go next door into Safeway to buy a few groceries, I see our babysitter, she tries to talk, I cannot, I cut it short, I say "rough day today"..
I get back into ballet, one of Ada's classmate's mother is there, she knows I had the surgery, she asks.. I tell her, she hugs me, I hug her back.. I feel lost, I feel scared - really scared - .. I am scared to die, not for myself, but for leaving my girls, not being there when Deniz does her next science project.. not there when they lose their first tooth, not there when they ride their bicycle without the training wheels. Don't get me wrong, I am sure I will be scared when the "time" comes but at that point, it was mostly being scared of leaving my family..
The ballet is done, we pick Ada up from daycare, drive home, Dan is home! He is home! Deniz turns on TV and starts watching "Arthur"
Dan and I just sit at the dinner table and look at each other. "WTF are we going to do?" At that point we hear the TV.. "..'s mommy has cancer..." really could this be true? On that day the Arthur episode was about "CANCER"! really? it must be some cosmic alignment of events.. So this will make it easier for us to talk to the kids about cancer..
Next day Dan and I go to the Dr. together. Ada is sick, her nose is running non-stop (that night her fever hit 105F!, 40.5C). We talk to the Dr., and decide to have a mastectomy the following Wednesday.
I come back to campus and teach my last lab of the week, go home.. so Dan can go to work (he had to stay home with Ada)..
Next day, my mom and sister have tickets to come to GJ on Monday.. sigh! I had been saying that we could wait but I am so grateful that they are coming. We spend the weekend, in a semi-normal fashion.. we take a walk as a family in the neighborhood. That evening we tell the girls that mommy has cancer that she will have a surgery and the Dr. will take out her breast... later she will probably have medicine that will make her hair fall out, so we will shave it, just like Daddy's head! They are not too happy about this, but don't ask too many questions..
Monday, Dan stays home again, because Ada is still sick, we are all on Tamiflu (except Ada because it is too late for her).. I go to work, tell one of my classes, it is mostly juniors and seniors, I know most of them.. well, there is no way of hiding it, right, I will be gone, I will have surgery, I won't function fully for a while.. The other class I don't tell anything.. I go to my shrink, I cry, I yell, I react.. at the very end she helps me to do self hypnosis to calm down and relax and it really works..
During all this time I am trying to see an oncologist!! heck, I have cancer and an oncologist won't see me until I have the surgery and they know what the condition of my lymph nodes are.. EXCUSE ME, I am about to give up one of my breasts, is it too much to ask to talk to an oncologist before I have this surgery? So I decide to be an aggressive patient, well, I have an aggressive cancer so I have to be an aggressive patient, right?..
Have you watched, Sex and the City? when Samantha gets Breast Cancer, she goes and sits at the best oncologist's office until the secretary lets her have an appointment (well of course she does take advantage of her sexy boyfriend). So I go to the cancer center. I go to the receptionist, tell her my situation, I say I need to talk to someone.. She says the doctor's cannot, because of legal issues, I am not their patient yet! And then tears starts falling down my cheeks, she comes out, she sits down with me, she is a breast cancer survivor also. She has young children also, she had triple negative breast cancer also.. so this calms me down a little, but she does say that she had an MRI before her surgery.
After the nonproductive but semi successful trip to the cancer center I go home, Dan goes to work. few hours later I put the girls into the van and we drive to the airport. I realize I don't have any dinner in the house, so I start to heat up water for pasta... It is sooo good to see my sister and mother. We hug.. drive home.. Dan is home by now, my mom and he hug! It makes me happy.. eat dinner, go to sleep.
Next morning my sister and I go to the Surgeon's office. I ask him, can't we do another test, what if it has spread? finally he gives in and says, maybe we can do an U/S on the other breast.. then he talks to the Dr. who had done the original ultrasound and he convinces him that it is better to do an MRI! YAAAY! Why do I want to have another scan before the surgery? because I want to know if there are other tumors in THE breast, I want to know if there is anything in the other breast, so if there is I will have double mastectomy.. Yeah, they will do biopsy on the removed breast, but it could be like looking for a needle in the haystack! They immediately make an appointment for MRI, and we rush over. Of course I do not hear about the results that day, and the surgery is next day.
On Wednesday, I teach my classes in the morning, my sister comes, picks me up and we go to the hospital. Dan arrives. Paperwork.. bloodwork.. IV.. Then we go downstairs to have radioactivity injected into my breast. This is done so that they can find the nearest lymph node easily. The technician is really nice. She holds the syringe, and says this is the sample we are going to inject, it has 0.5mCu!! WOMAN ARE YOU CRAZY!! stay away from it!!! I worked with microCurries of radioactivity in grad school, and we stayed behind the Plexiglas... she "assures' me that it is only a "minuscule" amount of radioactivity. Then takes an autoradiogram of mine, to make sure that it is in the right place.
the OR is a little behind, so the Dr. comes and talks, the anesthesiologist comes and talks.. we wait. finally they take me in. I ask the Dr. "give me a nice scar!" - I had for a while considered reconstruction and he had suggested leaving extra skin to make the reconstruction easier later, but since then I have changed my mind. A breast cancer survivor actually showed me her 'reconstructed' breasts.. I am not sure if I want a breast that is really not mine.. I will think about it later.. So I want a zip-line, no extra skin, no flap..
I go in, I fall asleep, ooh, how I was looking forward to that sleep, I have been so tired. Both physically and emotionally... so it was easy for me. I didn't know how long I stayed in.. But I guess it took longer than expected. Dan and my sister had been worried. The doctor had said that if he finds the sentinel lymph node to contain cancer then he would take out all axillary lymph nodes. So of course that is what is going through their mind. Well, I awaken in the recovery room. My post-op nurse is a breast cancer survivor herself. She had double mastectomy followed by reconstruction. She says they still do not feel like hers.. Finally I get rolled into another room, and there they are. I remember the smile on their faces.. during the quick biopsy they didn't see cancer in the lymph nodes (of course it is important to wait for the longer and more sensitive biopsy).. We go upstairs into the room I will stay in. Dan leaves after a while, so my mom can come to see me.
By the way my mom has been awesome! I cannot imagine one of my girls being sick with cancer or any other serious illness - not now, not when they are 40 years old. I am sure it is hard for my mom, but she is holding up great, she cooks, she does laundry, she takes care of the girls, she is here for us! I am so LUCKY, I am so grateful..
My mom comes, sees me.. Berna takes her back to home after a while and comes back to the hospital to stay overnight. Last time she stayed at the hospital with me was when I had to be hospitalized after Ada's birth because of preeclempsia that I had developed..
They do not feed me - I have not eaten anything for 24 hours now. I am hooked up to a CO2 monitor, once in a while it beeps, I finally figure it out, every time I start falling asleep my breathing slows down/stops (because of the anesthesia that they gave me), so I wake up, start breathing again.. a little after midnight it got better, I could actually sleep a little.. as much as one can sleep in a hospital setting :) The next day the Dr. stops by, talks about the surgery.. he says I can go home, he is surprised they didn't let me eat anything - by now we are past 36 hours.. So in the afternoon I am released, come home, have a light dinner and go to bed. I am sore. there is a huge dressing on my left chest.. sleeping is not easy, I have to lay on my back, I cannot move around easily, but it really isn't as bad as I thought...
The events that happened after that in a shorter version:
- I started taking less and less pain killers, by the 4th day I was down to tylenol
- over the weekend, two friends from college, from my scuba diving club came to visit, it was great. They were in CO for work/skiing, so they sacrificed a day of skiing and came to see me. We talked about old days. My girls danced with them. They were so comfortable, as if they have grown up with them. I was so happy to spend those days with friends.
- On Monday I went back to work, I was sore but OK
- On Monday we went to the Dr. for post-up check-up, and that was the first time I saw him smile. He said that they could not find cancer in the rest of the breast tissue or the lymph nodes. AWESOME NEWS!
- I got confirmation that I got an appointment at MD Anderson Cancer Center for the following week. Bought a plane ticket.
- Went to Houston for 2 weeks. Talked to the oncologist, had several scans done, a few scares.. but finally there were no visible metastasis, and the suggested treatment was 6 months of chemotherapy.
- Came back finally saw an oncologist in town. They agreed to follow the treatment plan that MD Anderson people came up with, got things started, so I could have chemo the following week.
- Last week I got the port put in, out-patient procedure, sore for a few days, but improved quite fast
- and then the chemo started last week.. so now you have all the gaps filled in.. I will for sure remember some other stories to add, but that's later..